Avery looks really good these days, but you'll find her almost always with a runny nose.
She constantly feels the need to flush out any fluid lurking in her nasal cavity... I would too if I were her. She is still only eating baby food at night- Most nights it goes pretty good and she is letting me use the syringe again. This gets the food a little past the opening by her nose. She loves to eat, but will stop if it gets too annoying. I must wipe her nose 100 times a day... well not really, but it feels like it. I am careful not to wipe too much and I prefer to be the only one who does so. I usually ask people not to wipe her themselves or I remind them to do it gently. I usually use cotton balls- wet or dry. I also use her soft blankets as burp rags and then wash them daily. Occasionally she will develop a little pimple like bump. Her surgeon says this sometimes happens as the internal stitches are still dissolving. This bump comes and goes. I am to keep it clean with peroxide. We think her nose looks better today than it did right after surgery- more symmetrical. We know over time she will change as she grows.
I do pray for her to have a mini miracle and to have the best ever lip repair and no noticeable speech issues. I also pray that she has some extraordinary talent or gift that shines out like a beacon in the night.. that phrase sounds silly, but it's how I feel. I would love for her someday to stand out to her friends for reasons other than her unique look! Everybody has at least one of these talents or gifts.... so it will be our job as her parents to help her discover it and help her make it happen. This is true for all our children, every body's child, but for Avery it just seems so much more essential!
Good things coming your way Ava Baby!
2 comments:
i think i finally figured out how to leave a blog comment, lol. avery is adorable and looks great. i cant see the bump in the picture, but there is a lot of discussion on the cA board right now from someone else about the same thing and it being a stitch that hasnt dissolved. are you diluting the peroxide? i have heard its not good to use it straight and for lengths of time, but i could be wrong. i would think just using saline on it should be fine. well now i cant remember what else you wrote...
hugs from alabama!
jenn and syd
I honestly can't tell that she looks any different from anyone else. I think the surgeons have done an amazing job and she'll definitely get noticed when she's older, not for her unique look in an unusual way, but for her unique look in a beautiful way. You have a beautiful daughter for sure!
Kim
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