Still pretty dazed and confused. Avery is not sleeping all that well. She is not eating lots either, but I think doing okay for what she has been through. Avery is wanting to get into all kinds of trouble- a good sign I think! We had to finally put up a gate. We are not letting her do much by herself so needless to say mom is 24/7 by her side and is still in her PJ's from yesterday. I don't think were were keeping ahead of her pain as much as we could and the reason for that is Avery had not been letting us get a syringe by her mouth at all... so we have had to rely on just plain Tylenol. I did manage to try today and we got about half of it in. The Tylenol with codeine should work better.
Overall she is doing well and we try to take lots of naps. Yesterday she only drank about 10 oz which is not enough. today by noon she had already had 7 so we'll keep pushing the fluids. So far she's eaten, yogurt, pears and chocolate pudding and a push- up- she says emmmmmm after each bite of pudding and the push up! Tried some oatmeal too, but only took a few bites.
Avery still has an open mouth posture with her tongue out sometimes. She is drooling a lot and some nasal leakage- clear looking fluid which we think will happen until she is healed. She has discovered some new sounds. last night during our Friday night movie night she was yelling- yeah yeah yeah over and over- the kids could not hear their movie- way to go Avery! She sounds different to us, her cry has changed and she is louder too. She is starting to say some of her old words like Hi Dae dee for Hayden Hi dada, nigh nigh for night night and we think she is saying NO! to us. She is jabbering a ton of new sounds so I am sure she feels that things are working differently for her.
It's so nice to not have food come out her nose when she eats. We pray that this continues and we will have not problems with healing.
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